Відео

I’m 31, I decided not to have kids. Life very recently has started to make more sense for me. That is, for the rest of my time left here. I’ll always struggle to keep my place on top. Honestly believed maybe it gets better but it doesn’t. Your attitude is what actually changes. I’m over the sadness, I’m just focused now on being me.

Thank you!

This was a well prepared and meticulously organized presentation. How I wish Ms. Madman had been around when my son went off to college. Her passion and caring are evident. My son, who had been diagnosed with NVLD in 2004, is thirty three and in graduate school now. At the time of his diagnosis, there was very little information available. Support was limited. He had time accommodations for testing and that was about it. I had little understanding of the nuances and full extent of difficulty this condition would bring him and was at a loss as to how to help him. As he went on to college, I found that his academic success was excellent, but his social skills and relationships really suffered. The same is true to this very day. I was at a loss as to how I could help him, and only recently found your website. I want to thank you for your dedication and for the help you offer both adults with NVLD and their parents. Had you been a resource we could have had access to earlier on, I think my son would have had an easier and happier time. My hope is to continue learning about this uncommon and often overlooked disability so that I can now support my son more knowledgeably as he navigates the affects of this disorder. Thank you so much.

This made me cry so much! Im in my 30s and still feel like this, it breaks my heart to know little kids feel Ike this :( then again, I felt like this at 12 so it makes sense.

I sent an email how long to wait to hear back. I am interested in coming to the clinic

New content !!

thank you so much! this should be getting way more attention omg 😭

Why not ask for input from those who have NVLD?

Oh great finally, my condition will be recognized. Then maybe then studied more, so that we can get better help.

thank you for this- needed

thank you so much for your work!

Yah! Sound is working.

Thank you This hits hard for me. I just finished the day of being there for my kiddo in his online school as his emotional support. I look forward to watching this :) (am now)

Starting/doing new things is def a problem for me, an adult diagnosed in my early 60s after a lifetime of wondering what’s wrong with me, getting tested as ADHD and cPTSD in middle age, but feeling like there was something else - or additional - going on. I finally went for a third opinion and some extra testing and eval with a neuropsych, and she ID’d the NVLD. So when you think you’re being lazy or procrastinating, remember you may be avoidant due to NVLD. Because you may not cognitively register what’s going on; you may feel sleepy, or grouchy, or you get distracted rather than recognize “Oh, this is a new task or situation, I’m uncomfortable.” Because there’s so little treatment or therapy available for adults - like virtually none - we have to figure it out for ourselves.

I have a learning disability. It makes me feel suicidal

Please do a study for 40 year olds who weren't diagnosed until they were adults

Add a verbally abusive raging parent to the mix and you'll understand how terrible my son's life was. NVLD can manifest as profound depression and at 24, deeply depressed and bullied at school and at home by his father, my son with NVLD took his life. Please, please, please don't allow yourself to turn on yourself. I plan to advocate more for others who are struggling with this learning disorder. My son did eventually make friends, get good grades and find work. But it wasn't enough. LOVE YOUR CHILD WITH NVLD!

Still looking for connection of NLD with premature birth and chromosome xxy connection. From personal research my belief is connection is all neurological but definitely not psychological!

I have NVLD how do I support? I just got my diagnosis 3 years ago and I’m in my 40s I also have ADHD and dyslexia so you can imagine how school was for me… I’m still learning about NVLD and I would like to know more about adults coping with it.

Im an adult and have both NVLD ADHD and dyslexia. I wish there was awareness and support back then. Only got my diagnosis of NVLD recently I had no idea what it was.

I wish this had been a thing when I was a child. I’m nearly 50 and just learned that I likely have it.

Im so glad I came across this video! I too have ADHD and NVLD I fell through the cracks had no idea what the teachers were talking about either. Teachers thought I was a brat didn’t care but I was just completely overwhelmed and lost. At 10 years old they new I had ADD and a learning disability but I just found out at the age of 44 thé learning disability is NVLD and I’m learning about myself.

Im late diagnosed nvld at 40; thank you for this info. Many older people don't have nvld information and resources that would have been integrated into their experiences (like with educational programs and treatments). Such youtube vids like this are incredibly helpful

thanks for your work!

helpful! thx

late diagnosed NVLD person; this was an extremely helpful contextual explanation of CBT

more content please.

Our health insurance won't cover developmental delays not on the autism spectrum. I'm not sure if the new name will help with that. We gave a high school student who is falling through the cracks and have experienced closed door after closed door. I'm loosing hope.

Thank you for sharing Shari. Hope things are going well for you. I have a lonely teen and am trying hard to help, but NVLD is unheard of in these parts. No services to help as they don't understand. He doesn't blend in, but may have the creative ability to help bring understanding in due course.

When she mentioned about the kid telling her daughter about her backpack being in the pink bin and that she was sitting at such and such table, I didn't get it either until she explained. I am 32 years old. Stuff like that oftentimes still goes over my head unless something isn't explicitly stated. If someone said that to me, I would have been very confused about why someone was so enthusiastic about where their backpack was and where they were sitting. 🤣🤣🤣

Great stuff!

Ma'am you are very brave and my heart goes to you for sharing the story - it's frightened me but I'm so comforted to know I'm an NVLD. I always wanted to protect the god inside of me even when i didn't see any light. 💚 sincerely appreciate

Thank you for sharing your story. I understand how you feel, you sound like me.❤

I’m 34 and was diagnosed by a neurological center last year with NVLD. I always felt misunderstood growing up. And now I know why. I really struggled in math all throughout primary school and college. The neurologist said that I compensated for it very well though. Glad I know now and will continue to do more research!

Is it because of NVLD the Chris Rock dropped out of high school?

I wasn’t diagnosed with NVLD until I was 41 years old, these “testimonies” sound so much like me it’s scary. I was always the lost, confused and disoriented child in school. As an adult nothing changed, still lost confused and disoriented. As far as driving I could always end up an accidental tourist! As far as math is concerned, I’m lucky I’m an adult now so I never have to do it again! As far as picking up on non verbal cues…. I’m not so sure about that one?

I will say, I have done hours of research on this. And after study alot of places.. those of Eastern european decent can't read body language well. In parts of europe tucked away. Your totally normal. So, your probably really love to not hurt feelings and think before you speak. Your awesome!! !😊

Your symptoms sound very similar to Irlen Syndrome (Scotopic Sensitivity Syndrome)

Implicit nonverbal cues and social boundaries are imperative things to observe especially related to on the job training.

I appreciate the upload.

Wow. This is amazing. Im 45 and im living in a nightmare right now. My mom dealt with this stuff and is gone now. But right through from grade 4, i have had something, but the school absolutely refused to diagnose. I don't have high school and i dropped out twice and finished in grade 11 with no major subjects. There was all kinds of bullying and verbal abuse throughout the years that set me back years. My siblings get angry and everything. Now we are at the point of going for diagnosis.

Hate my life tbh. This sucks a lot.

My learning disability makes me feel frustrated

I was diagnosed with NVLD at 55 years old the exact same age that Chris Rock was. I related to the show Everybody Hates Chris because my life was so much like his. Although I'm female and biracial comedy is what I do best.

LD is a curse I hate it

The voice

If people could readily remember to use the strategies they likely wouldn’t have a diagnosis of EF difficulty. So true about not being able to ignore weaknesses. As you say focusing on strengths is not enough.

@14:35 _”language imposed upon math are particular areas of difficulty for individuals with NVLD”_ like word problems? Also, @18:00 what does _when things don’t organize well for people with ADHD…_ I don’t understand what _organize_ means in this context I would really like more information about this because… dear lord this explains everything. So much self loathing and confusion for so long but now… there are no words adequate enough to convey what it feels like to finally understand. 🖤

My son was diagnosed back in 2011 and I all I had was a website to help. It's been really difficult and the people around me didn't support my efforts. I began homeschooling him in 9th grade. I don't think I did a good job with him. He is in the Army now, but he hates it and wants to get out before finishing his tour and I don't want him to, I just want him finish and get out with benefits. Please help me help him. He is in complete denial now and thinks everyone is against him and giving him bad advice. How can I get him this help?

We are different but not broken. I draw when I’m in a classroom